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CMA advocacy expected to reduce administrative burdens for Parkinson's registry

Effective July 1, 2018, licensed independent practitioners, including M.D.'s, D.O.'s, P.A.'s and N.P.'s who diagnose or treat Parkinson’s disease patients, are required to report cases of Parkinson’s disease to the California Department of Public Health (CDPH) after first registering with CDPH through the designated gateway at The data collected will measure the incidence and prevalence of Parkinson’s throughout California, providing more understanding to improve the lives of patients.

The California Medical Association (CMA) and other stakeholders have worked closely with CDPH to reduce the administrative burden these reporting requirements may pose on health care professionals. Because of those efforts, CMA anticipates that additional changes further narrowing and streamlining the reporting obligation will be forthcoming in a third version of the Implementation Guide.

CDPH issued an initial guide in April explaining the reporting mandate, including who is required to report, timeline and the methods to transmit data to the registry. Since the issuance, CMA has expressed concerns to CDPH about the scope, breadth and timing of the new reporting obligation. CDPH had previously revised the guide to address several of these concerns, including limiting the number of reportable ICD-10 codes to only include patient encounters for diagnosis or treatment of Parkinson’s Disease or Parkinsonism occurring on or after July 1, 2018.

CDPH also extended the reporting compliance date for cases encountered during the first quarter the law is in effect (July 1 to September 30, 2018) from 90 days to 180 days, however, as of October 1, 2018, all cases must be reported within 90 days. Manual entry will remain an option for all providers.

The third update of the Implementation Guide is expected to be released soon, and CMA will alert members once it’s launched.

For more information, explore CDPH’s fact sheet.

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